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CARES Foundation

 2004 Annual Report

Highlights of 2004

January 1 - December 31, 2004

Programs

· Conference: Hosted all day (free) conference for individuals and families affected by CAH at Overlook Hospital in Summit, NJ.  Over 200 people attended from 23 states and 4 countries.

· CARES Support Groups: Added 12 new support groups, totaling 21 CARES support groups across the United States and Canada.

· Newborn Screening: CARES advocacy efforts resulted in 4 additional  states adding newborn screening for CAH.

· Research: Provided grants to 6 medical institutions for CAH related research.

· Newsletter: Developed and distributed 3 comprehensive newsletters to members and physicians across the United States and 40 countries abroad.

· CAH Awareness:  Initiated bracelet and holiday card programs in October, 2004 to raise awareness about CAH. Four thousand bracelets were sold in 2004.

General

· Moved  from basement to “real” office space able to accommodate additional staff and volunteers.

· Redesigned and expanded website including archived newsletters and improved navigation.

Fundraisers

· Year-End Appeal

· Instituted new mid-year appeal

· CARES members initiated 11 local family fundraisers around the country. 

If you would like a copy of our audited financial statement, please contact the CARES Foundation

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