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2006 CARES CAH Conference, November 12, 2006

CARES 6th CAH Conference, “Bringing the CAH Community Together,” was held on November 12, 2006. The largest and most comprehensive gathering of its kind, the 2006 conference featured several new programs and was met with an overwhelmingly positive response by participants and speakers.

“When I walked into the cafeteria and saw close to 300 people affected by CAH sitting together, laughing, sharing, and making friends, my heart was filled with pride and happiness,” said Kelly Leight, Executive Director.

Our Spanish-speaking families were especially grateful for the translation services. Many understood CAH for the first time because it was presented in their native language. In addition to translators for each plenary session, Dr. Alejandro Diaz spent over two hours with these families, answering all of their questions.

Other new programs included in-depth sessions on growth, weight management for CAH and emergency care. Our one-on-one Solu-Cortef injection and sick-day trainings made a significant impact on our families as presented in our Personal Stories page. Families were thrilled to be the first to receive our new Medical Alert cards. We were very fortunate to have “dummy” Act- O-Vials (filled only with saline), donated by our friends at Pfizer, to make the trainings as real as possible. The nurses from NIH, Saint Barnabas Medical Center and Children’s Hospital Los Angeles were fantastic teachers.

Of course, all of this would not have been possible without the beautiful, very large space donated by Seton Hall University. 

 Seton Hall University, South Orange, New Jersey

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